ROAR! 5K - 2025

Rare Disease/ Disorder Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. Leona was diagnosed with a Rare Genetic Disorder before birth "15q26.3 deletion", with limited information and a projected timeline. She has grown and developed into a strong 6-year-old today, as part of her village I had always envisioned a program to enhance public knowledge and allow a platform for questions and information.

This 5K is in its 2nd year, and we are hoping with your support you will learn and embrace a community for inclusion. Proceeds will support our Initiatives and Donations made towards NORD - National Organization for Rare Disorders.

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